Sacred Heart Hospital Bariatric Forum




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 Posted 11/12/2010 6:50:39 AM
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I just want to make a comment on my feelings on the lack of support from Sacred Heart.  I had my surgery 7 years ago at Sacred Heart.  At that time the support group was comprised of any one who had gastric bypass surgery and was very large and overwhelming.  Apparently I got lost.  When I had asked for dietary help I was told that I was too far out (1 year) and would have to pay.  I remained on the email list through several different coordinators.  However, recently someone asked for an update on my status and I was honest.  I explained that I was able to maintain my loss through my daughter's brain tumor surgery and recovery.  But when both of my parents took ill and through their death I regained my loss rather rapidly.  Even though I had gone through counseling for several years it appears that I never conquered my emotional eating.  It reared its ugly head during my parents illness and my subsequent loss of both of my parents within 9 months.  Also I was put on Effexor during this time and don't know if that had anything to do with it.  For various reasons I have gone off the Effexor and have recently lost 15 lbs rather rapidly.  Well anyway my point is that after I was honest about my maintenance it appears I was taken off the email list and do not get any notices of meetings nor updates.  So it makes me feel that Sacred Heart likes the people who have losses and maintain them and not the people who need help.
Post #20169
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 Posted 11/13/2010 9:14:56 AM
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I dont beleive thats the case i think sacred heart has gone through a lot of transitions,  It a two way street you have to be proactive when it comes to your weight loss and the keeping it off its a tool to use ultimately its up to you Im sure if you had called someone would have gladley helped you ive been with sacred heart support team since 2005 and ive never felt abandon they are just a phone call awayand through the years  ive heard a few cordinators say if you have any problems call us. I hope you do well with your weight loss you can relose, it i have gone up some and lost some of it im not all they way back but im not giving upweight problems are not going to run my life like it did before I am now a confident person i can look people in the eyes when i talk to them and not look down at ground from being beaten down about my weight, Please come to the Bariatric meetings  there are things that the support team can do for you to lose weight again have you tried the five day pouch test its in the archives in here some where just tpe in 5day pouch test,it really works

biggie
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 Posted 11/13/2010 6:00:40 PM
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I have to agree with both of you. There has been a lot of transitions since my surgery and a lot of issues that have been left on my plate as well.

Unfortunately a good number of friends had fallen away due to the different transitions that have come up in the past. One thing I can say is there has been numerous support groups to attend if you so choose. This tool is just that, a tool. We have to control what we put into our mouths.

Currently I am behind the eight ball with a knee injury and since I had to take steroids to get rid of the swelling because of the NSAID issue, I had put some weight back on. One issue is the gain from the med, but the other is my stress eating/carbs. I know the latter was my fault and I take full responsibility for this.

Now to the initial post, there needs to be more accountability on each person’s part, as well as, proper support for those of us that are outside of the honeymoon phase time period. I had attended a meeting and when this very question was addressed. We were told we don't know what to do for you all that are out a longer time.

This made us that were in attendance feel like we don't matter any longer so a group of us stopped going any longer to any support group. We kept in touch over the recent years via the internet, but as time went on, we slowly stopped communicating until someone would send out an email. There would be an on slot of mailings pertaining to the issue but it was shortly lived. Like a flash in the pan.

Since word of mouth advertising is essential to getting the message out, I would hope that this can be addressed and a lesson be learned. Most everyone that have been out there for some time will become less involved due to this very reason, lack of help.

If our issues of management are not addressed, it will come back to be a problem with people getting down on themselves and before you know it, This Thing Didn't Work! Then the program gets a black eye and everyone will eventually start looking elsewhere for help and the loss of positive advertising will hurt the program and facility.

My prayers for this program are, addressing issues that pertain to early post-op through long time recipients. This will keep everyone fresh with the process at their level of time out and those professionals will be better educated for issues along the time line.

Unfortunately every body is different and their dietary needs are also different. I know that protein, protein, protein is a given, however a cookie cutter plan for everyone surely has to be addressed and research needs to be done to help those out there any length of time struggling to maintain their hard fought efforts!

I know that from an advertising perspective, this can either make or break a good thing. We know that ultimately it is an individual responsibility, but when there are no further resources available people will start talking negatively and this will eventually affect everyone at some level or another.

Just my thoughts and not of the hospital or the bariatric program.

Bill


Bill Wirtz

Diver989

Another day closer to my dream!  Cool

Post-Op Dr. Sawyna 07/17/2007
Post #20174
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 Posted 11/14/2010 5:10:00 AM
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Well said Mr. Bill.
I think you have put into words what I have been feeling for years now.

While I understand that there is a level of personal responsibility, I feel that I was dropped by the wayside years ago.

Hopefully we can get things turned around and get everyone back on track...without having to pay $200.00 for a Back on Track program!!

MamaJ

PS - Miss you!!!!!!!!!!!
Post #20175
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 Posted 11/14/2010 2:29:49 PM
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Mr Bill has said what ALOT of us that are further out from surgery are feeling.  I think that SHH should consider putting a support group together to help us. We know what we should do to not regain weight and we know what we need to do to keep weight off.  WE NEED SUPPORT!!! 

My husband and I are both 3 years out and are really struggling.......I reached out to the SHH bariatric program (we both went through our surgeries at SHH) and I was told to see the nutritionist and to excercise!!!  O.....and I was told that the Back on Track program would be starting up again.  OK so telling me things I already know and telling me to spend $$ on a back on track program?  HOW IS THAT SUPPORTIVE?

I am hoping that SHH opens their eyes and sees that there is a need for a new support group.  We were good enough to support before and right after our surgery but now, at 3 years out, we are left high and dry.  I feel like we post ops arent bringing them any $$ in, so they dont need to support us?!?!?!  (just being honest)

Jenn and Darin
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 Posted 11/15/2010 9:43:25 AM
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Hey All - I tried posting on this last week, and for some reason wasn't able to.  I think I ended up sending the original poster an email b/c I couldn't get anything else to work.

I agree with what everyone has stated so far.  For me, it was all about personal responsibility.  When I went through SHH program with Doctor Holland (May of 2007) the program was in transisition of losing the manager (Karen).  As the new program came into view, I believe that I got the support I needed.  I made friends quickly, posted a TON on the forum & got involved in EVERYTHING & ANYTHING I could, via in-network & out-of-network (having little get togethers with my new bari-friends, etc...).  When the program diminished & doctors & staff left (Dec of 2007 into Jan of 2008) I follwed my surgeon to his new location.  I attended one or two of SHH's meeting; but b/c at that time, the LAP BAND was the only surgery being performed, I felt as though those meetings would not help me.

For the past two years, I have regularly stuck with the meetings where I felt most comfortable.  W/ the help of MySpace and Facebook & other social media, I have been able to connect with lots of bari-buddies......I held myself accountable, and because of that, I have been able to manage my weight loss fairly well. 

I had two extra surgeries over the past two years, which I was not happy about, but they have only made me stronger & more wiser to this surgery.  I do believe that support groups should be based MORE on post-op then pre-ops.  That has to be recognized.  SHH used to host smaller meetings in my area, where it was more of a "round table" event, where we could share information, rather than just hearing someone speak of exercise, or food prep or whatever.....

I believe more research needs to be done for people who are 3+ years out - b/c the "newness" has worn off, rules are broken, and lifestyles go back to what they were pre-op.......I don't think any back to track program should cost patients extra money; but lets face it, it is all about business.  What needs to happen; is the ongoing support through the team on a continual basis (keeping in contact with patients over the years via email & follow-up appointments, etc....).

I will be more than willing to help out in any way possible........my email is megs@ptd.net and my cell is 570-657-6920....

Meg


~Meg~
RNY 5/21/07, Hernia Repair 3/25/08, Perforated Ulcer/Bowel Leak, 9/13/10
Maintenance of 90-100 lbs!
"Keep on Keepin'''''''' On.."
One day at a time, one moment at a time, keep getting up when we fall and trying to move one foot forward... even if it seems we are not going anywhere.... this journey is sure not for the faint of heart or those who have "give-up-itiveness" but we must all have "stic-to-itiveness"
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 Posted 11/16/2010 12:01:02 PM
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Hello Everybody,

My name is Kathy.  I am a Director at SHH, and have been for 18 years.  I was asked a few months ago to get involved again in the bariatric program.  I have followed the program (sometimes closely, other times from a distance) through the years.  Like any program it has had it's ups and downs.  I respect each one of you and your opinions to see the program succeed as well as support you in your own successions. 

From what I am hearing, everyone feels they would benefit from an additional support group.  Would you suggest that it is just for post-ops?  Would you suggest it is for post-ops after one year, for post-ops struggling?  I would love to hear from you, your ideas for a solution.  Please feel free to e-mail me at kseitzin@shh.org.  I will compile the reponses at the end of the month and report on them at the team meeting, so we at Sacred Heart, can serve you better and support you on your continued journey.

Everyone have a great night and stay dry!


~ Kathy RN BSN

 
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 Posted 11/28/2010 1:03:38 PM
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Unfortunately I will not make the December meeting. I am having surgery on my right knee again!!! Sheesh...

I hope those that are able to attend will offer your thoughts to help us remain on track. We didn't go through this to be flashes in the pan with a tremendous weight loss to gain it back.

I am also hoping that those of us long time post-op'ers and the bariatric team will post about the outcome to help those of us that have been out multiple years. We are in need of support more so than those in the hunnymoon phase. This is when it really gets interesting and we need all the encouragement we can muster.

I asked, please post about the event and the meeting. I need your posts to keep on track and remain encouraged!!!

God's blessings to everyone here. BigGrin

Bill


Bill Wirtz

Diver989

Another day closer to my dream!  Cool

Post-Op Dr. Sawyna 07/17/2007


Edited: 11/28/2010 1:04:22 PM by diver989
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 Posted 12/2/2010 4:48:12 AM
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Hi Bill- I would be happy to see you to discuss some of your issues and struggles. Too bad you weren't at the October support group where I spoke about "Getting Back on Track."  You can call 4928 to schedule an appt with me. The team has been discussing the comments posted on this forum and are working on a plan to help long-term post-ops as a group. I was very surprised and disappointed to read that someone said  "We can't help you you're too far out."  Angry     Good luck with your knee surgery!   Lisa
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 Posted 12/3/2010 7:38:15 AM
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Hello,

I haven't heard from anyone regarding what they would specifically like to see for post-op patients.  We are happy to meet and plan if we understand the needs of the patients that are having problems.  Again, please feel free to e-mail me with any suggestions you may have about post-op bariatric support groups.

Thanks!

kseitzin@shh.org


~ Kathy RN BSN

 
Post #20199
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